September 14-16, 2026

2026 Rare Trials Summit

InterContinental Boston

The Rare Disease Drug Development Summit

A working meeting for those responsible for advancing rare disease clinical programs:

  • Clinical operations and trial delivery

  • Patient advocacy and engagement

  • Clinical and scientific development

  • Regulatory and evidence strategy

A conference hall during the 2025 Rare Trials Summit with a large audience, a stage with two presenters, and screens displaying sponsor logos.
Panel of six patient advocacy leaders and a moderator, sitting on stage at the 2025 Rare Trials Summit, with Pat Furlong, on the far right speaking into a microphone, dark curtains backdrop, blue-themed stage with a banner displaying the event logo.
Exhibit Hall during lunch time, with round tables, attendees talking, and large vendor exhibits in the background.
People sitting at round tables in a conference room, engaging in conversations, with a woman in a teal blazer speaking to a woman with dark hair, a flower arrangement on the table, and attendees listening or drinking coffee.

2026 Media Partner